Sites Focusing on Specific Types of Cancer

DISEASE-SPECIFIC

• MedlinePlus
  Information on conditions, diseases and wellness, plus a medical encyclopedia; information about generic and brand name drugs; dictionaries with spellings and definitions of medical terms; directories with locations and credentials of doctors, dentists and hospitals; access to organizations, consumer health libraries, international sites, publications, MEDLINE and more. Input the name of any medical condition or cancer diagnosis and get up-to-date information.

BLADDER

• Understanding Bladder Cancer
  This is a patient’s guide to understanding and dealing with bladder cancer.

BRAIN TUMOR

• American Brain Tumor Association
  Presents brain tumor information, treatment explanations, support resources and research updates.
• National Brain Tumor Foundation
  A not-for-profit organization offering support and education.

BREAST CANCER – ADVOCACY

• Breast Cancer Action
  An advocate group dedicated to finding a cure for breast cancer and to making information available. Publishes BCA News.
• Breastlink
  A useful resource provided by the Breast Cancer Care and Research Fund, this site about breast cancer; is easy to navigate and includes recent research, articles, and an easy resource page with links to other sites.
• The Catherine H. Tuck Foundation
  The Catherine H. Tuck Foundation is a nonprofit organization that offers breast cancer patients financial assistance through the “Catherine Fund”.    They assist with payments for non-medical expenses such as rent, utilities, transportation for treatment, childcare during treatment, and food.
• Mothers Supporting Daughters with Breast Cancer
  A national nonprofit organization co-founded by a mother and her daughter.
• National Breast Cancer Coalition
  A grass roots advocacy group.
• Sharsheret
  A national not-for-profit organization of cancer survivors dedicated to addressing the unique challenges facing young Jewish women living with breast cancer. By pairing those in their 20s and 30s who share similar life experiences as well as diagnoses, Sharsheret aims to provide support and resources for young Jewish women fighting breast cancer. Call toll-free (866) 832-9909.
• Sister’s Network
  A national African-American breast cancer survivors’ organization.
• Vital Options, Telesupport Cancer Network
  A not-for-profit organization using communications technology to reach cancer survivors. It has a radio program, The Group Room.
• Young Survival Coalition
  An international, non-profit network of breast cancer survivors and supporters dedicated to the concerns and issues that are unique to young women and breast cancer. The YSC seeks to educate the medical, research, breast cancer and legislative communities and to persuade them to address breast cancer in women 40 and under. A point of contact for young women living with breast cancer. (212) 577-6529

BREAST CANCER – INFORMATION

• Cornell University Program on Breast Cancer and Environmental Risk Factors (in New York State)
• Plastic Surgery Information Service: Breast Reconstruction Following Breast Removal (ASPS & PSEF)
• Breast Cancer Society of Canada
  An Ontario, Canada-based organization that focuses on research.
• Community Breast Health Project
  A nonprofit resource center located in Palo Alto, California. Provides breast cancer information and support.
• Inflammatory Breast Cancer
  Information regarding the relatively rare inflammatory breast cancer.
• Living Beyond Breast Cancer
  A non-profit educational organization committed to empowering all women affected by breast cancer to live as long as possible with the best quality of life.
• Resources for the Newly-Diagnosed Breast Cancer Patient
  A 12 minute web-based presentation by Wendy S. Harpham, M.D. that provides an introduction to dealing with cancer and using available resources to make life easier, safer and less frightening after a cancer diagnosis.
• Susan G. Komen Breast Cancer Foundation
  General information about breast cancer and sponsors of the “Race for the Cure.”
• SusanLoveMD.com
  Founded by author and breast cancer surgeon Susan Love, MD and dedicated to breast cancer and other women’s health issues.

BREAST CANCER – PSYCHOSOCIAL

• The Avon Breast Cancer Crusade
  Founded in 1993, this is a U.S. initiative of Avon Products, Inc. Its mission has been to provide women with direct access to breast cancer education and early detection screening services: mammograms and clinical breast exams.
• Children and Breast Cancer
  Personal accounts by Lyn and James Swinburne.
• Y-ME National Breast Cancer Organization
  A national support organization that sponsors
  a hotline in Spanish and English.

BREAST CANCER – RISK

• FORCE: Facing Our Risk of Cancer Empowered
  For women who are at high risk for breast and ovarian cancer including BRCA1,2.
• National Society of Genetic Counselors
  Offers information about genetic counselors who can assist in assessing rsks and options.
• Harvard Center for Cancer Prevention
  Offers a method for assessing and lowering individual cancer risk.It is the first self-administered.

CARCINOID

• The Carcinoid Cancer Foundation
  This extensive site includes information about carcinoid disease, its development, and its treatments, and answers frequently asked questions. There is a link to a California support network.

EYE CANCERS

• Eye Cancer Network
  This educational web site provides information on the diagnosis and treatment of eye and eyelid tumors. They have listings of eye tumor doctors, general information and support for eye tumor patients and their families.

GYNECOLOGICAL CANCERS

• American College of Obstetricians and Gynecologists
  ACOG serves as a strong advocate for quality health care for women.
• Conversations!
  The international newsletter for those fighting ovarian cancer.
• The Gilda Radner Familial Ovarian Cancer Registry
  Located at Roswell Park Cancer Institute, Buffalo, New York, this organization is an international registry of families with two or more relatives with ovarian cancer. In addition to ovarian cancer research, the registry offers a help line, education, information and peer support for women with a high risk of ovarian cancer.
• Gynecologic Cancer Foundation
  A not-for profit charitable organization to support philanthropic programs to benefit women who have, or who are at risk for, developing a gynecologic cancer.
• Gynecologic Oncology
  An international journal, is devoted to the publication of clinical and investigative articles that concern tumors of the female reproductive tract.
• National Ovarian Cancer Association
  Dedicated to overcoming ovarian cancer.
• National Ovarian Cancer Coalition
  Founded by ovarian cancer survivors in Boca Raton, FL, NOCC works to gain national recognition for the SILENT killer, ovarian cancer.
• Ovarian Cancer National Alliance
  An extensive resource of information about ovarian cancer.
• Ovarian Cancer Research Fund
  Dedicated to advancing research, raising awareness and finding a cure for ovarian cancer in the 21st century.
• Society of Gynecologic Oncologists
  A professional organization for gynecologists and obstetricians.

HEAD AND NECK CANCER

• Support for People with Oral and Head and Neck Cancer (SPOHNC)
• Milton J. Dance, Jr. Head and Neck Rehabilitation Center
  Located at Greater Baltimore Medical Center.

KIDNEY

• Kidney Cancer Association
  The Kidney Cancer Association is a membership organization made up of patients, family members, physicians, researchers, and other health professionals providing information services and drug trial information, research education, advocacy, and support.

LIVER

• MEDLINE Plus: Liver Cancer
  The National Library of Medicine through the National Institutes of Health provides detailed disease-related information, including a site dedicated to liver cancer, its diagnosis and symptoms, related clinical trials and research, treatment, and information about coping. (Also in Spanish).

LUNG

• American Lung Association
  The mission of the American Lung Association is to prevent lung disease and promote lung health. It promotes tobacco control, asthma education, environmental health, research and professional education, and advocacy, multicultural and communications programs.
• Alliance for Lung Cancer
• Drop Cigarettes

LYMPHOMA & LEUKEMIA

• The Leukemia & Lymphoma Society
• Free Educational Brochures and Pamphlets (LLS)
• Lymphoma Research Foundation

MELANOMA

• Melanoma Patients Information Page
  This site provides the support and information melanoma patients need to be proactive participants in treatment decisions.

MYELOMA

• International Myeloma Foundation
  The Myeloma Foundation is dedicated to improving the quality of life of myeloma patients while working toward prevention and a cure.

OVARIAN CANCER

• Conversations!
  The international newsletter for those fighting ovarian cancer.
• The Gilda Radner Familial Ovarian Cancer Registry
  Located at Roswell Park Cancer Institute, Buffalo, New York, this organization is an international registry of families with two or more relatives with ovarian cancer. In addition to ovarian cancer research, the registry offers a help line, education, information and peer support for women with a high risk of ovarian cancer.
• National Ovarian Cancer Association
  Dedicated to overcoming ovarian cancer.
• National Ovarian Cancer Coalition
  Founded by ovarian cancer survivors in Boca Raton, FL, NOCC works to gain national recognition for the SILENT killer, ovarian cancer.
• Ovarian Cancer National Alliance
  An extensive resource of information about ovarian cancer.
• Ovarian Cancer Research Fund
  Dedicated to advancing research, raising awareness and finding a cure for ovarian cancer in the 21st century.
• Ovarian Plus: Gynecologic Cancer Prevention Quarterly
  Hard-to-find facts for the 21st Century information seeker.

PANCREAS

• UCLA Center for Pancreatic Diseases
  The clinical arm of the UCLA Center for Pancreatic Diseases applies a multidisciplinary approach to the evaluation and treatment of patients with pancreatic diseases.  The Center combines the expertise of physicians from surgery, gastroenterology, radiology, medical oncology, and pathology who are specialized in pancreatic e diseases.  The Center’s surgeons all perform a high volume of pancreatic operations yearly and are experts in advanced laparoscopy.

• Hirshberg Foundation for Pancreatic Cancer Research
  Founded in 1997, the Hirshberg Foundation for Pancreatic Cancer Research is a national, nonprofit organization dedicated to advancing pancreatic cancer research, and providing information, resources, and support to pancreatic cancer patients and their families.

• PanCAN
  Pancreatic Cancer Action Network provides information, support & referrals to individuals with pancreatic cancer. Toll free: 1-877-2PANCAN

PROSTATE

• Prostate Cancer Foundation
  PCF is a primary source for new standard-of-care and research information. They connect patients, loved ones, care providers and scientists to critical updates, the latest developments, best practices and news from the treatment pipeline.
• Virgil’s Prostate Online
  One man’s on-line guide to surviving prostate cancer. He provides valuable links, and shares about his journey, including treatment discussions and survival tips when treatment is complete.
• Prostate Cancer Research Institute
  The Prostate Cancer Research Institute’s mission is to end prostate cancer as a threat to any man’s life or quality of life. PCRI is dedicated to educating the public about prostate cancer, pursuing research into the prevention and treatment of prostate cancer, and improving the present level of care for men with the disease.

pseudomyxoma peritonei

• Pseudomyxoma Survivor
  Global non-profit organization, run by patients and caregivers. With volunteers all over the world, they have a thriving support community providing emotional support to anyone whose life has been touched by PMP. As PMP is so rare, having a global presence gives the community a scale where it is able to offer genuine support and advice around the clock – both emotional and practical.

SARCOMA

• Sarcoma Alliance
  Striving to extend and improve the lives of sarcoma patients through accurate diagnosis, improved access to care, education and support.

TESTICULAR

• Testicular Cancer Resource Center
  The Testicular Cancer Resource Center is a non-profit organization devoted to providing accurate, timely information regarding testicular cancer to patients, caregivers, family, friends, and physicians. There are links to other sources, and resources for contacting expert physicians in the field. This outstanding, comprehensive site, maintained by testicular cancer survivors, contains valuable information including self-examination, post-treatment sexuality, testicular implants and personal experiences.
• OncoLink: Testicular Cancer
  This site sponsored by the University of Pennsylvania provides extensive information about Testicular Cancer, screening, and treatment for patients, their families and physicians, and offers on-line support to patients and their families. There are numerous links to journal articles that may be helpful to you as you face cancer treatment.

THYROID CANCER

• Thyroid Cancer Survivor’s Association
  This site maintains current information about thyroid cancer and support services available to people at any stage of testing, treatment or lifelong monitoring for thyroid cancer as well as their caregivers.